hello everyone! so today was a pretty good day atleast for mommy and daddy and grandma and grandpa Edwards because Edward had the top off his iceolette twice today which means we can give him lots of kisses! so at his 1 oclock cares Grandpa took his temperature and Grandma changed his diaper which was a fun one because it took about 10 min to get off all the poopy from his little butt..poor Edward. he also had to have his Tube reajusted so Grandma and Grandpa got a good view of his face and his cleft. I really think he is getting cuter and cuter everyday! our Day nurse today Anna says she thinks he has my eyes which makes me really happy! Anna also let me hold the feeding tube and feed him today for the first time which made me happy! tonight we had Donna again who is the nurse who wants to be his night primary (yay!!!!!!) she let david do the feeding this time which was really cool and I helped her weigh him which means I got to pick him up and I also helped her change his blankets. so overall today was a good day the only things that were concerning was his glucose was still not normal and right before David and I were leaving tonight he kept destating so please pray for his glucose and his little lungs. Also I just want to say thank you to all of you who are praying for our little angel it really means alot and it just blows me away how many people we don't even know are praying for him. thank you so much you will never know how much it means and how much you all have touched our lives. thank you!
God Bless,
Misty
Ps. Edward says Hi to Grandma and Grandpa Schwendeman, Grandma and Grandpa Menken, and Nina and Pepa <3
precious
grandpa and edward (look at how small Ed looks!)
hello again!
getting his tube fixed
Our nurse today Anna (the RT took this picture and anna was not amused!)
Ed's Cleft
Ed holding Grandpas Hand
Grandma Edwards changing Eds super poopy diaper
Grandpa Edwards taking Ed temp
precious
grandpa and edward (look at how small Ed looks!)
hello again!
getting his tube fixed
Our nurse today Anna (the RT took this picture and anna was not amused!)
Ed's Cleft
Ed holding Grandpas Hand
Grandma Edwards changing Eds super poopy diaper
Grandpa Edwards taking Ed temp
Hello!
ReplyDeleteI found your blog and wondered if you had heard of the Oley Foundation yet.
We offer free information and peer support for families like yours with a member on home tube or IV feeding. Check out our website at www.oley.org.
In particular you might be interested in the
• Meet Patients Section (try all three links)
http://www.oley.org/volunteers.html
http://www.oley.org/call.html
http://www.oley.org/forum.htm
• Oley's annual conference -- where you can learn a lot about tube and IV feeding and meet other families facing similar challenges. Preliminary details are posted now, but keep checking for updates at http://www.oley.org/2009_Annual_Conference.html
There are travel scholarships for first time attendees.
If you have any questions or would like to be introduced to another family, feel free to contact me.
Warm regards,
Roslyn Dahl
Oley Foundation Staff Member
dahlr@mail.amc.edu
(800) 776-OLEY