Edwards NICU stay at OneTrueMedia.com

here is a video I made a while back of Edwards NICU stay enjoy!

Make video montages at www.OneTrueMedia.com

pictures from the last week!

Edward'd first swim!

so we are in Denver because Edward has a pulmonary appt. early in the morning and since there is a pool at our hotel we decided to take Edward for his first swim! he wasnt so sure about the whole thing! well thats it for now except please pray because Edward has to have surgery #9 on the 21st :( he has to have his nissen repaired... oh well good night all!

Edward cracking up!

pics of Edward from last week.... what a week!

Aunt Dawn came to visit and help out!
Edward wasnt feeling very good but was doing better on saturday so we went to Armed forces day at the mall! Sunday took a turn for the worse and ended up in Denver in the hospital
we finally got to return home yesterday :( and are pretty worried about having to go back :( Edward has to get his nissen repaired because it is no longer working and he has an increased chance of aspiration so we are watching him pretty closely to make sure he doesnt aspirate :(


thanks to Dawn for the pictures sorry they are out of order!

hello Nina and Pepaw

Edward says Mama!!

yay Edward said his first word!!! he is saying Mama!!! check out the video below!

sad

Edward is back in the Hospital :'( possible infection having some Bradycardia I will keep everyone updated as much as I can

looking better

looking better not going home today though hopefully tomorrow

good news

Out of the PICU and up on the 9th floor still in alot of pain 1 or 2 more days and then home
here is a picture of Edwards poor swollen face

all done!

So Edward is out of surgery he is in the PICU and doing pretty well the only issue he is having is his blood pressures. he keeps waking up and whimpering it is so sad. please keep praying. here is a first look at his new lip and nose!

surgery update

they started at 3 instead of 11 because another surgery went late but now he is in there and they say he is doing good and they are currently working on his lip

Surgery

OK so heres the deal. Edward's surgery is tuesday :'( I absolutly don't want him to get his lip fixed because I don't want him to change even though I know he will be just as cute if not cuter after his surgery :'( but still I will be mourning his extra wide smile! ok so here are the details he has to be there at 9 for pre-op stuff and then his surgery will begin at 11am and they are expecting it to be 6 hours long (they are also doing another surgery to fix his manly parts plus ear tubes and an audiology screening while he is out) Here are my prayer requests:
1. he makes it through the surgery fine
2. he can come off of the ventilator quickly (he doesnt do so well with that)
3.that he is not in alot of pain afterwards
4.that David and I make it through this whole thing
5. that we get to come home quick and get back to our normal lives for Edwards sake
6. that Edward doesnt hate me because he has to wear those stupid "no-nos" on his arms for 3 weeks
7that Edward heals quickly

pretty much thats it. they are going to put him in intensive care right after because of his history with problems coming off the vent but hopefully he can get moved to a normal room quickly.


please pray for us! here is one last look at Edward with his extra wide smile




~Misty

Happy Birthday

Edward is officially 1!!!!! I never thought we'd make it this far! I am so proud of my little man! Edward is now sitting up on his own and trying to crawl he gets around by army crawling :) he is making leaps and bounds! so this morning instead of our normal food for therapy we did a cupcake for his birthday and he absolutely loved it! he almost ate the whole thing! I was so proud of him I cried (just a little) God is Amazing! look at how far my miracle man has come!!!






Happy birthday boy!
yummy cupcakes!
Edward's birthday cupcakes!

rub a dub dub

so here is a picture to brighten your day :)

only 8 days till Edward is 1!!.... so crazy!!


~Misty

update 1-18-2010

Edward is getting so big! we went to Ohio for Christmas and had an amazing time and we really enjoyed getting to see all the family (even a few people we hadn't seen in a few years!) It was wonderful! Edward loved opening presents which makes me even more excited for next year when he is really aware of whats going on! Now we are looking forward to Edwards !st birthday...(AHHHH HE IS ALMOST A YEAR OLD!!!!!) Im so excited! He is making leaps and bounds and is sooo close to crawling! Actually tonight he figured out peek-a-boo it was soo cute he kept pulling the covers over his face and yanking them away and ten cracking up! I love my son! well I have tons and tons of photos to post but with our new camera Im going to have to re size them so bare with me! hopefully now that the holidays have settled im planning on trying to blog once a week! hope all is well!

~Misty