tomorrow?

So the hope is that we get to go home tomorrow. we still arnt sure if that will happen but we are hoping. Edward is doing great and they have cut his lasex in half so we are crossing our fingers! We also really hope to be able to bring him to the preemie party at university tomorrow but we will see. we made a plaque for UCH's NICU to thank them for saving Edward's life with a special thanks to "Team Edward" :) well that's it for tonight hopefully I will have good news to report tomorrow... we will see.

~Misty

:'(

so we are stuck here till at least Saturday most likely Sunday. I really wanted to show Edward off at the preemie party Saturday at university but I guess that's not going to happen. he is doing OK the only issue is he is still having a really hard time pooping so now they are going to give him prune juice. I'm really tired of being at the hospital and the doctor didn't make me feel much better because he told us to get used to it because it gets worse in the winter. I wanted to punch him.... anyway Edward doesn't even realize anything is wrong he is happy as can be! here are some pictures from earlier today.

~Misty

another update

so we thought we would be getting out today but we came in this morning and Edwards heart rate was through the roof (up around 200) and he is still on alot of lasex. so pretty much the doctor said that until he is weened from the lasex we are not going home :( that's about it i will do more in depth later!
~misty

hospital..AGAIN!!!!!

so yep Edward is in the hospital again. same issues as last week. he seems worse though because he wont stop screaming. they think he just needs more lasex but we will see :(. hopefully things will get better. they said we will find out if we can go home after his doctor sees him tomorrow. they did say we can still go to our cleft appointment tomorrow even though he is admitted so that is a good thing! hopefully things will start to o better. goodnight all.
~Misty
after his shots on thursday he was not a happy camper!
back in the hospital

good day!

so today was a great day Edward is now 11 pounds! he did get his shots though which he was not a fan of but he eventually got over it! we also had an awesome evening at our friends the Searls house and Edward got to hang out with his buddy Spencer who was in the NICU at University at the same time as him! what a great night! good night all! ~Misty
my 11 pound little Turkey (lol Sandi! oh and by the way he is wearing the onsie you bought him!))

yay! on our way home!

on our way to cheyenne!

going home?

so Edwards CT came back and his lungs are very under developed and his airways are unusually small and thick. right now the only thing they are going to do about it is at home breathing treatments. so yep right now we are waiting on the docs to round to find out if Edward gets to go home today! we are hoping! I will update more later!

~Misty


"But I wanna go home now!"

update

so Edward had his bronc today it went well but he isn't recovering as well :( there were some blockages they took care of and his airways are pretty small he also has very very premature lungs. well that's about it I'm trying to figure out how to put up the pictures I took with my phone.. we will see.. ~Misty
before his bronc
after he needed a breathing treatment
after not doing so hot

quick resluts so far

Edwards blood Gas was better but his chest x-ray showed that part of his right lung is collapsed and they did an echo but no results from that yet. they think the reason for the collapse in his lung is some blockage so when they do the bronc they will get a better look. well that's all for tonight good night all please pray!
~Misty

back at childrens

So yesterday Edward had a pulmonary appointment and they did a routine chest x-ray/blood gas and well they were both terrible...so here we are again..back at children's. we are not in the NICU this time though we are up on the 9th floor in the pulmonary unit. so later today they are going to do a repeat gas and chest x-ray plus an echo of his heart (it looked enlarged in the last x-ray) so hopefully things have improved. we will be here until Tuesday at the earliest because the are going to do a bronciostomy on Monday to get a better look at his lungs plus an MRI just to see whats going on... pleas pray for him hopefully things will improve! I will try and blog more later after we get his results from today! until later...

~Misty

sorry everyone!

sorry everyone it is so hard to post with Edward home because he takes up so much of our time :) and sorry for no pictures but for some reason our camera isn't working :'( but not to worry David just set up our web cam! so hopefully we will be online with that in the very near future! well that's all for now Edward is doing great! He is getting so big I'm guessing he is close to 10 and a half pounds..so crazy!!! if you really want pictures and I don't already text them to you email me @ misty_menken@yahoo.com with your # and I will put you on my texting list! have a great day everyone!

~Misty

Update!

Dad Here, It been a little while since I posted. Over all everything here is going pretty good. Edward is doing really while with the exception of still requiring a lot of oxygen and sometimes needing extra effort to breath. Edward had a follow up with the surgeon today and everything looks pretty good in regards to he past surgeries. he also got his feeding tube port replaced which was good due to the fact that the old one was leaking. Edward is up to 10lb. 3oz. he is getting so big it crazy. Well I think that all the new I have for you tonight.

David.

sorry

sorry there hasn't been any pictures... Its So hard to keep up now that Edward is home the day just slips away! well not much to update Edward is doing really good! I can't talk because I am cutting into my precious sleeping time! hopefully when Dave gets home from work tomorrow I can try to do the pics but I make no promises! Just a fun fact Edward loves his mirror.. he seriously stared at himself cooing for like 3 hours today... cheap entertainment! well goodnight all!
~Misty

happy 4th!

So today was Edwards first Independence day! it was a great day we had a cook "in" (it was raining) at our neighbors house and then it cleared up just in time for fireworks! well not a whole lot of news Edward is doing pretty great! I will post pictures tomorrow sometime if things aren't too crazy because I'm super duper tired! Goodnight all!

Ps. Edward and I are so proud of his daddy for serving our country! please keep all the men and women in the armed forces in your prayers! Happy 4th!

~Misty

pictures!!!!

so not alot to write about Edward is now 9 pounds.... he is doing ok but is up to 1/4 on his oxygen. so yep sorry this took so long but without further ado PICTURES!!!!!
ps. i need to start taking more on my camera and not my phone...

Edward and Grandpa
staring contest with Uncle Adam
everyone chillen
Ed and Kel
talkin to Aunt Kelli
a little frightened of all the camera flashes
" you did what!?!?"
"im serious guys im gonna lay the smack down if you take anymore pictures!!"
awww he loves his Aunt!!