So alot of news to report tonight since there was only a brief update yesterday. So Edward has recovered from his surgery well. And we have had alot of specialists and doctors stop by to see him in the last 2 days. so yesterday he was seen by Audiology because he had failed 2 hearing tests. well we have some sad news 1st they defiantly found fluid in his right ear so that means he will eventually get ear tubes. second in his left he has nerve damage so that means he may have some hearing loss in that ear. next we meet the cleft palate nurse and the occupational therapist who works with the cleft clinic and also the physical therapist. today we met the Ear Nose and Throat surgeon and the social worker & case worker. But there is some good news in all of this and that is that Edward passed his room-air challenge (he went for 40 minutes without oxygen with out dropping his sats too low or dropping his heart rate. so that means we will be able to go home on Monday as long as nothing happens between now and then! so Edward will be going home on oxygen, a monitor, his g- tube, the pump that goes with it, and possibly a suction machine! so basically we will have a NICU in our house! The only sad thing about this is that we will be coming back to Denver one or two times every week to see different doctors! well that's about it I need some sleep David and I are going to Cheyenne tomorrow for a couple of hours to get things ready! good night all and thank you for all the prayers! GOD IS GREAT!
~Misty
I'm so happy that Edward is getting to come home soon! And one thing you can mark of your list of concerns is getting the tubes in his ears. My son (who was also preemie) got them recently and I think his immunizations are more traumatizing than that procedure! It was quick and he was back to normal very quickly! Praying for you all.
ReplyDelete