sadness

so they didn't extibate him today because another baby was having problems so Edward will get extibated tomorrow at 11:00 am. he is doing really well today his oxygen is down to 31! other than that not a whole lot of news... oh they did try a pacifier and he liked it...well i better go we are headed back to the hospital sorry there isn't a whole lot news but there are pictures! enjoy!
~Misty

so happy

cutiepatootie!

last day with the ventilator

1 Kilo

Hello everyone, Dad here. Today has been a very busy day. I was back and forth to the airport twice today. Once to take Grandma Edwards to the airport at 4 am and the second time around 2pm to pickup my parents. So both grandma and grandpa Menken are now here and really enjoying getting to see their first grandchild.

Well we got a lot of news for you tonight about Edward. First off, he has finally joined the Kilo club. He has more then double his weight which is a very good start. Now we just have to pack about another 3 pounds on him before he will be able to come home with us. Today we also found out that tomorrow they are going to go ahead and attempt to move him up to a high pressure nasal cannula. They have started him on Caffeine and steroids again to help build him up for the move. Please pray for him and the everyone that will be working on him tomorrow. If the high pressure nasal cannula does not work they will have to reintibate him with a larger tube. Well that is about it until tomorrow.

David

Little Edward trying to get his tube out.

All stretch out

Still trying to get his tube out

Grandma Menken holds Edward

2 times!

So today was kind of a rough day for Edward. He was desating alot so they did a chest x-ray but it showed that his tube was still in place but they also found out his "small" air leak was actually a large air leak it was actually leaking 80-85%. So now their plan of action is to talk to the attending doctor tomorrow and possible try to extibate him early next week and try the high pressure nasal cannula because he saw the ear nose and throat specialist this morning and they don't think a custom palate protector will work with cpap. so we will see how well he does but they basically said the amount of air he is getting now with the leak is about equal to what he would get with cpap so he will probably do better than they originally thought. so we have definitely made progress with the plan to get him off the ventilator. on the bright side of things I got to hold Edward twice today! it was awesome! well that's about it I will let you know in the morning if he made it to a kilo! oh and I will post pictures (our camera died so we don't have many from earlier so I will take more at his 9 o'clock cares). good night all!
~Misty

almost a kilo!

hello everyone! so today was an interesting day for Edward they went down again on his vent settings which was great except that after they did that he started desating more and more and now his oxygen is a little higher than normal. because he was desating so much I didn't get to hold him. so now its been 3 days since I held him and I'm going through withdraw! well that's about it except that he gained another ounce making him 2 pounds 3 ounces! he should hit a kilo tomorrow!

I had my 6 week postpartum check up today which went well except that they say that if I get pregnant again I Will more than likely have the same issues and they might happen earlier. so now David and I have alot of talking to do because I don't think I want another one if we are going to have to go through this again because it is not fair to the child. I guess we will have alot to pray about before we even think about another one (in the very distant future). well I'm gonna get some sleep good night all!
~Misty
tired
trying to keep my eyes open
look at his beautiful eyes!

First bath Pictures

Hey, Hey, whats going on here.

Oh boy, I really don't like this.

Boy, I'
m tired. that bath thing wares me out.

Trying to suck on my thumb

I give up.

Good Busy day!

Hello everyone, today has been a pretty good day. A lot of things happened today. Edward got his first bath (sponge bath) which he did not enjoy at all. he was moving all around and trying to roll over. Today he also received his first Eye exam, He's eyes still have premature vessels which was expected. they will recheck his eyes in two weeks. He now weighs 2lb. and 2oz.

Today misty, Grandma Edward and I visited the Cleft lip and pallet department at Denver Children's hospital just a block down from where University of Co. hospital is. We got alot of really good info regarding what the course of action will be once he is ready for the for it. normally they start the surgeries at about 3 months but for him it will be quite a bit further down the road to to how premature he was. So over all we had a pretty productive day. Well I'm quite tired, so I will upload some pictures tomorrow afternoon.

Thank you all for you continued thoughts and prayers,

David

hello everyone! well today was a pretty good day not a whole lot of new info. Grandma Edwards came to visit and got to hold Little E. He did Brady a couple of times today but brought himself back up. that's about it for Edward. other than that we had a pretty fun evening! My Uncle Greg and 2 year old cousin Lily came to the Ronald McDonald house for dinner and some play time in the huge play room here. we had an awesome time! well I gotta go I need some major sleep I'm exhausted! until tomorrow..
~Misty

so cute

wide eyed!

aww Edward and Grandma Edwards

his new diapers are as big as him!