Really quick update

Sorry everyone, no big update tonight. mommy is staying at the hospital with Edward tonight, and then we get to take him home tomorrow. We will have a photo post tomorrow for all of you. Everything is going really well and we are really excited that we get to bring him home tomorrow. It will be nice to get into routine even if we have to come back to Denver like once a week for appointments. Well I am really tired and have to get up early to clean and check out of our room at the Ronald McDonald House. So that it for tonight we will have more tomorrow.

David

another quick update

Sorry everyone, no photos tonight. I'm sure some of you will not be happy with me because of this but hopefully mom will have some for you tomorrow. Well today has been a very long day. The drove back this morning from home was pretty smooth. Today we meet with the company that will be delivering Edwards monthly G tube supplies. It looks like Insurance will be paying for some of his milk formula, which will be a incredible blessing. We also were able to finish all of the information movies that they require the parents to watch before they get to go home.(CPR, car seat safety, and home oxygen)

Well over all Edward has had a pretty good day. He past his car seat challenge (his Oxygen levels don't drop while he is in his car seat). He is now up to 6lb. 14oz.. He is huge to us. which is sad because he is still on the small end of full term new Born's. Edward has been extremely cranky today which is pretty odd for him he is normally very mellow. We think he just has a lot of gas build up in side his belly so hopefully by tomorrow he will have been able to push most of that out through the G tube when it venting. So it still looks like we are on track for going home on Monday. well that's it for tonight.

David

anxiety

so yeah I am having major anxiety! Today David and I came home to Cheyenne to get things ready for Edward and we ended up having too much to do so we ended up staying for the night and now I am freaking out because Edward is 2 hours away! anyway apparently he has had a really good day or so the nurse said over the phone! wow I am so glad he is coming home Monday because I won't have to be away from him anymore! well not alot to report because I was only at the hospital once today and that was this morning... I need to get to sleep because we have to leave here at 6 am because we have a meeting at the hospital at 8:30... good night all! ~Misty

good and bad news.

So alot of news to report tonight since there was only a brief update yesterday. So Edward has recovered from his surgery well. And we have had alot of specialists and doctors stop by to see him in the last 2 days. so yesterday he was seen by Audiology because he had failed 2 hearing tests. well we have some sad news 1st they defiantly found fluid in his right ear so that means he will eventually get ear tubes. second in his left he has nerve damage so that means he may have some hearing loss in that ear. next we meet the cleft palate nurse and the occupational therapist who works with the cleft clinic and also the physical therapist. today we met the Ear Nose and Throat surgeon and the social worker & case worker. But there is some good news in all of this and that is that Edward passed his room-air challenge (he went for 40 minutes without oxygen with out dropping his sats too low or dropping his heart rate. so that means we will be able to go home on Monday as long as nothing happens between now and then! so Edward will be going home on oxygen, a monitor, his g- tube, the pump that goes with it, and possibly a suction machine! so basically we will have a NICU in our house! The only sad thing about this is that we will be coming back to Denver one or two times every week to see different doctors! well that's about it I need some sleep David and I are going to Cheyenne tomorrow for a couple of hours to get things ready! good night all and thank you for all the prayers! GOD IS GREAT!

~Misty

Quick Post

Well Edward had an over all good day. Not a lot to report on. He is currently still on high flow and they are working on weening him down to low flow. Mommy will have a larger update tomorrow but I do have a few Pictures for you all tonight.

David.

Edward with one of his favorite nurses last full day at UCH.
But I don't want to leave.
maybe just a little bit happy.
Please no more pictures.

ok day

so today was an ok day Edward got an MRI this morning Sandi came to visit around 9. he got extubated around 1 then he got to start eating again at 5. and ENT (ear nose and throat) surgeon came and looked at Edwards cleft. then at 8 Carrie and Amanda (Carrie was Edwards day Primary at UCH and Amanda is another nurse who took care of him) came to visit!! well that's about it for today Edward had alot of ups and downs today so hopefully tomorrow will be a little better. oh and btw Edward is 6 pounds 10 ounces! well good night all sorry no pictures again but i only had 2 hours of sleep and I can barely function! good night all!
~MISTY

Surgery update

This has been a very long day to say the least. Thank God, All of Edward surgeries were successful and he did extremely well. He will remain on the ventilator at least until sometime tomorrow and more then likely longer. They have setup a mri to check his pituitary gland and a hearing check tomorrow morning. As I said it has been a very long day so we will have more new for all of you tomorrow.

David.