Thursday, April 2, 2009
I have a crazy baby
so Edward has decided that he would no longer like to stay in one place. its pretty funny I caught him several times today escaping from his bed I will try to post the video.. he is so strong! Another huge thing that happened today that made me so happy is we tried putting him to my breast after I had already pumped and he licked and tried to suck a little.. it was so awesome! also Donna is back so Little E is happy! well that's about it Here are some pictures to enjoy and hopefully a video! ~Misty
my little burrito
Wednesday, April 1, 2009
great day!
so today was a pretty amazing day! Edward did so great he barely desated!he is so crazy! when the nurse went in to feed him this morning he was all the way at the bottom of the icolet! he also got some quality time with both Mommy and Daddy! Mommy got to hold him @ 1 and daddy got to hold him @ 5. It was so cute when Daddy was holding him they both fell asleep (well daddy started too). David said it was the most comfortable nap he had ever taken! well that's about it but I have a whole lot of pictures! enjoy! ~Misty
Loyal changing Ed's diaper
quick hello
Edward says hi to melissa and all the 4th graders at St. Cecilas! And all his Aunts, Uncles, Grandmas and Grandpas!!
update!
hey everyone so today was a good day for little E. he is still going strong on the nasal canula! not a whole lot else to report except that they drew labs to check his electrolites and every thing came back normal so now he can stop taking those meds. he is such a fighter he reallly makes his mommy so proud! i am so in love with my little boy! well good night all im off to bed i will post pictures tomorrow!
~misty
~misty
Monday, March 30, 2009
Doing Good!!!!
Dad here, We almost forgot to blog tonight, Fortunately for all of you we remembered. Well Edwards is doing amazingly well, Even the doctors are impressed. He is now past 24 hours on his new oxygen supply system. He really hasn't had any issues except for a small scary which wasn't his fault. For the time being he really hasn't desated at all. about the lowest he has gotten was about 75 % Saturation and he bounced back really well. It kinda exciting we are finally able to hear our little guy cry a little. lol, I'm sure I won't say that I'm excited to hear him cry in a few months. We are also noticing that he seems to be sleeping more now. Which is a very good thing and most likely because he is more comfortable. We are really hoping that he will continue to do good with the nasal tubes. If he doesn't he will most likely be move back to just a bigger ventilator tube. But we would love to take two steps forward and no steps back. Well that if for tonight I have to get pretty early to take my parents to the airport. Thank you all again for all of you thoughts and prayers.
David
My little guy. : )
Sleepy time! All wrapped up.
David
Sunday, March 29, 2009
Finally!
so as of 7pm tonight he is finally extibated! It took long enough! first they were going to do it on Saturday then it was supposed to be @ 11am today so I missed church so I could be there but then @ 10 till 11 they came and said closer to 1 and then 1 o'clock came and went and I got very upset because nobody was communicating with us so our nurse Sandy (who was amazing!) set it up so I can stay @ the hospital tonight and she got me 2 meal vouchers. well we pretty much thought it wouldn't happen until tomorrow but when they had done the chest x-ray earlier in the day it showed the tube was almost all the way out anyway so we kinda thought he might pull it out himself. well, when I came back from dinner I got the good news that they were going to try and do it @ 7 which amazingly actually did happen! so now I'm blogging really quick because I need to get back to the hospital. They said he might eventually get tired of breathing on his own and have to reintibate him so I really want to be there if that does happen. so Pray for Little E he has a long tough night ahead of him! ~Misty
oooh down to 27% oxygen last few minutes on the vent!
Quick update.
Hey just wanted to update everyone really quickly. Edwards tube removal has been delayed most likely till tomorrow due to the doctors "being busy". we will update more later.
David
David
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